Visual medical literacy
2,000+ coded, visual rare-disease HealthJournals turn dense clinical data into clear illustrations.
A 24/7 navigator for the hardest diagnoses.
Rare-disease families are left clutching PDFs, CDs of scans, genetic reports and half-understood diagnoses. My StoryMD Journeys, powered by an AI health agent, turns that chaos into a living, personalized, visual roadmap.
$135–155B
global rare-disease therapeutics market (2023–24)
BioSpace
3–5×
higher medical costs for rare-disease patients
NIH
2,000+
coded, visual rare-disease HealthJournals
The real record, in the family's own language.
The AI health agent reads the real record — labs, imaging, genetics, medications, symptom logs, wearables — and speaks the family's language: what this biomarker means, what this gene variant suggests for this child, which symptom to watch. It converts scattered data into a single clinical narrative and a visual timeline a clinician can review in minutes.
A roadmap that keeps pace with the diagnosis.
Visual explanations of rare and chronic conditions, and guidance that updates as new results arrive.
Dynamic, longitudinal guidance
New labs, symptoms and prescriptions update the roadmap — what to watch, what to ask next.
Clarity for the people doing the caring.
A companion that knows the whole story, plain-language answers, help with the day to day, and family who can follow along from anywhere.
An ecosystem tool, too: pharma patient-support programs, nurse navigators, advocacy foundations, trial sponsors and pediatric-to-adult care transitions all run on the same unified record.
A 24/7 AI health companion
A companion that knows a loved one's whole story — and helps manage it, every day.
Personalized interpretation
Reads the real record and explains what each result means for this patient — not generic content.
Day-to-day for caregivers
Checklists, appointment prep, symptom and medication logs, and emergency plans — one care coordinator.
Family alongside
Remote relatives can see and understand their loved one's story — and stay connected.
Understand the diagnosis.
What a rare diagnosis means, how childhood cancers are treated, why the whole child matters, and what caring asks of a family, explained on StoryMD.
JournalRare Diseases
What makes a disease rare, and the challenges families living with one share.
JourneyChildhood and Teen Cancer Journey
The cancers children and teens face, from diagnosis through treatment, explained visually.
StoryYour rare disease is not your whole story
Why tracking the whole person, not just the diagnosis, changes rare-disease care.
JournalCaregiving
The day-to-day of caring for someone, and support for the people doing it.
No one should navigate health alone.
StoryMD's caregiving layer is a secure, all-in-one way for family, friends and caregivers to take an active role in a loved one's care — without the stress that usually comes with it. Their health story follows the person, wherever their care happens.